News, Updates and What's On
Shyla Mills steps down as CEO of Palliative Care Queensland
HCQ would like to share the news that Shyla Mills is stepping down as CEO of Palliative Care Queensland. She is relocating to Adelaide to be closer to family and to take on the role of CEO of Palliative Care South Australia. Many consumers and health staff on our...
COVID-19 Community of Interest
If you would like to be a part of a statewide group of consumers who are interested in being involved on COVID-19 responses, please register your details via the link below.
COVID-19 – Initial Response
A pandemic is an unprecedented event for our State. An enormous amount of work is currently being led by the Chief Health Officer Jeanette Young and undertaken by people across many organisations and areas of Government as the pattern and spread of COVID-19 changes daily.
It is undoubtedly a challenging time for all of us. It requires a coordinated cross-Government, industry and community response. We have been doing our bit to ensure consumers are being involved in key decisions and we have been listening to the voices of concerned consumers and carers.
Getting Consumers Involved in Key Decision-making
Last week we invited representatives from the Department of Health to hear directly from twelve experienced and potentially vulnerable consumer partners from across the state representing Aboriginal, culturally and linguistically diverse, and rural and remote communities, people living with multiple chronic conditions or disabilities, parents of immuno-suppressed children and/or with chronic conditions and older people. You can read a report based on these discussions and what matters most to them. This report has also been shared widely with key leaders in the Department of Health.
At a Queensland Health COVID-19 forum this week Health Consumers Queensland declared that consumers and carers must be at the planning and decision-making table on this issue. We emphasised the important role consumers can play in shaping communications so they are received and understood by our diverse communities. In response, the Director-General of Health, Dr John Wakefield, has shared his expectation to the Queensland Health system leadership that it is more vital than ever that the voice of consumers is heard and valued and that the partnership between consumers and the health system is strong in this time of crisis.
Additionally, the Health Consumers Collaborative of Collaborative meeting this week focused on a workshop with consumers and senior representatives of the health system about the priorities for ensuring a consumer engaged response to COVID-19. This developed actions, principles of engagement, and networks that need to be engaged with.
We are currently planning and reviewing our work priorities for the year. We will continue to share with you about outcomes and actions that arise from this and other activities that we are involved with. read more…
enews – July 2019
IN THIS ISSUE:
- From the CEO
- Annual Forum 2020
- Annual Forum photos available now
- West Moreton Training
- Introducing our Health Consumer Advisory Group
- Statewide talks about end-of-life matters and regional palliative care wraps up
- Youth mental health update
- DoH training dates
enews – June 2019
In this issue:
- From the Chair
- Annual Forum 2019
- Community-based training
- PTSS Update
- What matters to you in relation to ageing, end-of-life care and dying
- Expanding Quality and Safety reporting kitchen table discussions update
- Department of Health training
enews – may 2019
In this issue:
- From the CEO
- An invitation to talk about what matters to you in relation to ageing, end-of-life and dying
- Project Update
- Health Consumers Queensland’s ‘What matters to you’ focus group sessions
- 2019 Annual Forum
- Queensland Clinical Senate Forum
- Department of Health Training Dates
eNews – March 2019
In this issue:
- From the Chair
- 2019 Annual Forum Update
- Community Assistance Available
- HCQ showcases consumer engagement at recent CheckUp Forum
- Aspiring Women’s Leadership Summit
- Talking about what matters to you in relation to ageing, end-of-life and dying
- Patient-Centred Care Training for Offender Health Staff
- Department of Health Training Dates
- Partnering with Consumers Training – for Private Organisations
- Graduate Certificate in Consumer and Community Engagement – Brisbane
- Health Consumers Queensland Impact Evaluation Project
eNews – February 2019
In this issue:
- From the Chair
- 2019 Annual Forum – we’re going to Cairns!
- 2019 Annual Forum Registration and Travel Support
- Become a presenter at this year’s forum
- HHS Engagement Map
- Offender Health Services Review
- Office Launch Party
- Mental Health Organisation Update
- Department of Health Training Schedule
- Date Claimer: Graduate Certificate in Consumer and Community Engagement
- Community Training Day
eNews – December 2018
In this issue:
- From the CEO
- From the Chair
- Consumers lead consultation at the kitchen table
- Annual Forum…2019!
- Staff Shout-out
- Staff and consumer training – Central West
- Department of Health training dates
- Construction of a co-designed adolescent mental health centre
- Youth Peer Work under spotlight
- Want to help guide our work?
- Christmas closer
- Your input into eNews
eNews – November 2018
In this issue:
- From the Chair
- Health Consumers Queensland news – Free consumer training opportunity at Logan Central Library
- Consumer support in the far far north
- 10th birthday celebrations and launch of new Strategic Direction
- Staff Shout-out
- Health Consumers Queensland in Darling Downs
- West Moreton Hospital and Health Service Staff Forum
- Queensland Health Consumers Collaborative – seeking new members
- And we’ve moved
- Other Health Consumers Queensland news HCQ Dept. of Health training workshops
MEDIA RELEASE – GOVERNMENT RESPONSE TO SENATE MESH INQUIRY
10 October 2018 Sorry is a Good First Step
Peak consumer health groups around Australia have welcomed Health Minister Greg Hunt’s apology to women whose lives have been severely impacted by trans vaginal mesh implants.
“We congratulate the Minister for recognising that these women have waited too long for validation from a system that treated them as unreliable witnesses to their own pain and suffering.” “But ‘sorry’ is just a good first step. It doesn’t in itself deliver a happy ending.”
While the government has supported 12 of the 13 recommendations of the Senate’s Inquiry into TVM, half of these are supported in principle rather than in substance. In fact the only tangible initiative is the announcement of a Clinical Quality Register for urogynaelogical procedures and even that commitment is capped at “considering the feasibility” of establishing such a register.
Glaringly absent is any new funding to resource integrated care pathways for affected women.
“We are concerned that State and territory support for mesh affected women has to date been inconsistent and patchy with attempts at meaningful co-design of care pathways happening only in a small number of states.
“These women must be central to the design of appropriately resourced and compassionate, multidisciplinary care that includes access to removal by skilled clinicians, pain management and psychological support. We call upon COAG to direct the states and territories to work together to ensure a nationally consistent service response to women’s healthcare needs.
“While the federal Health Minister has kicked the mesh can down the road to the States he is also calling for system reform through institutional self-regulation. Expecting the various bodies that failed their duty of care to pick up their game without addressing their accountability is a forlorn expectation.”
“Further expecting the TGA to improve its adverse event reporting is at odds with the fact that they have registered 364 events to date compared with the 1,000 women who are parties to class action and the 2,400 women who have reported their experiences directly to consumer health groups. “The Minister needs to act decisively on the question of credentialing surgeons and on mandating informed consent (70% of affected women did not give informed prior consent to their procedure). While we applaud the few substantive initiatives announced in this response, a reliance on nonbinding guidelines and self-regulation by bodies that have failed to self-regulate will not wish the problems of mesh away.
For comment and further information contact:
Melissa Fox (Health Consumers Queensland) 04048 2716 / 07 3012 9090
Danny Vadasz (Health Issues Centre, Victoria) 03 8676 9050
Anthony Brown (Health Consumers New South Wales) 02 9986 1082
Julia Overton (HCA SA) 08 8231 4169 Pip Brennan (Health Consumers WA) 08 9221 3422
Darlene Cox (ACT HCCA) 02 6230 7800
Upcoming events
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